tag:blogger.com,1999:blog-609706155970920065.post3921766134272007387..comments2024-03-29T07:33:40.454+00:00Comments on Cripple, baby!: 8 things you should know if your friend suffers from a chronic illnessCrippleBabyhttp://www.blogger.com/profile/06874076844367856139noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-609706155970920065.post-72116220187692017292015-04-02T17:23:09.942+01:002015-04-02T17:23:09.942+01:00Glad to hear your friend isn't in that categor...Glad to hear your friend isn't in that category! :) I definitely think there's something to be said for the person who is ill/ partner of/ family of taking some responsibility... Sometimes it can be so hard to talk about things, but we forget our friends won't understand unless we discuss it with them. Joining a support group is a great idea, I think it's something I'm going to look into myself :) xxxCrippleBabyhttps://www.blogger.com/profile/06874076844367856139noreply@blogger.comtag:blogger.com,1999:blog-609706155970920065.post-66301373041326156962015-03-21T10:44:05.352+00:002015-03-21T10:44:05.352+00:00Thanks so much for the reply CB! But I have to say...Thanks so much for the reply CB! But I have to say, my friend is not an asshole, far from it!! Thats why I went to them. They don't understand and they felt they had to say something... My partners condition is rare so I won't hold it against them. You've helped me realise that it's up to me to help my friend and others understand.... And it's up to me to see the lighter side :-) I also joined a support yesterday, so thanks again XXXAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-609706155970920065.post-30023009005973267052015-03-20T14:24:18.575+00:002015-03-20T14:24:18.575+00:00Hi anon, thanks you so much for your honest and he...Hi anon, thanks you so much for your honest and heart felt comment! You make an excellent point that carers experience what their loved one does -emotionally, and even financially sometimes. They often stay at home with their sick partner (or even their sick child) when they are really ill, and so miss out on social aspects of life too. <br /><br />I'm lucky enough to not require full time care (or as of yet anyway, I'm not really sure about the future), but my partner has been a massive help to me when I've needed -Both physical help and listening to my rants, and I do worry that he might not get the support he needs. It's tough on him at times of course, and I'm sure he doesn't want to always discuss his worries with me as to not upset me... I try to bring him to doctor appointments so he knows what's happening and understands, but a lot of the time the future is just as uncertain for the carer. <br /><br />Being young (or at least, "too young for illness") has a huge affect on how people perceive myself, him and our relationship. Maybe you should show your friend this blog post and others like it, and maybe send some links about your loved ones condition? And also show her/ him your comment here? Although I have to say, they sound very cold and callous to not care about you or your partner -If they disregard your feelings like that, you're better off without them in your life. I know that sounds harsh, but there is a difference between lack of knowledge and just being a downright asshole.... Please take care of yourself, and thank you so much for posting xxxCrippleBabyhttps://www.blogger.com/profile/06874076844367856139noreply@blogger.comtag:blogger.com,1999:blog-609706155970920065.post-41666753562681295692015-03-20T13:20:54.717+00:002015-03-20T13:20:54.717+00:00The love of my life is chronically ill and it terr...The love of my life is chronically ill and it terrifies them (and me) what the future might bring. We don't even know where to start to plan for the fact that their life if greatly shortened and their quality of life is already shit. We're young and we want kids but my partner is terrified of putting any kid through whats instore nevermind never seeing grandkids and leaving me too soon. I tried to confide in one of my best friends and all I got was, "ah sure it'll be grand" as if people who are genuinely sick don't really moan about it and just get on with things and that its somehow not the same as its not happening to me. I may not be ill myself but it is happening to me. The love of my life is dying slowly right before my eyes and I need support from friends. But they are young so they couldn't possibly be that sick! In addition, my partner is depressed by this and lost the will to enjoy life. living with this everyday is heart-breaking. I'd love nothing more than for them to enjoy what life we have left together but for them that's easier said than done.<br /><br />I understand that down-playing the magnitude of chronic illness stems from a lack of understanding but I felt as though my friend thought I was overreacting... And that hurts.<br /><br />Thanks you sooo much for writing this blog. Its comforting to know that someone understands. Here's hoping others take note XXXAnonymousnoreply@blogger.com