Wednesday, 4 October 2017

A big cripple baby thank you


Apologies in delays in getting this up, and apologies also for it's shortness -my fingers are in a right state at the minute, so writing and typing is very difficult. I'll do a post tomorrow on health updates.

Without further ado however, a big thank you to my bestie Sarah for organising a recent fundraiser in our local town -The Cripple Baby Gameshow, hosted by musicians and general funny men TPM.


Which took place in The Spirit Store (cheers Mark and Derek!). In what as an amazing night, full of devilment, cheese and laughs, the event raised a massive €1,600! Which will go a huge way towards my treatment and tests in London. The raffle received a massive response with donations from -

Secondly, thank you to the contestants and everyone who helped out on the night in so many various ways, and who donated or helped out with props! - (in no particular order) Emer, Serena, Dara, Sarah, Tasha, Breanainn, Christina, Evan, Nikita, Kyle, Mark, Romeo, Anthony, Charlotte, Frankie, Fahy, Isabel, Mr. Price for donating decorations and Conlon's Food Hall for the yummy curry.... Forgetting a million of individuals I'm sure, there's a few people that I don't even know that helped out in all sorts of ways! A massive thank you to all, and to everyone who came along of course, from the bottom of my heart.

Thursday, 17 August 2017

Friends corner: Ehlers-Danlos Q&A {part 2}

Following on from part one of friends corner: Ehlers-Danlos Q&A, here's part two with some more friends. Enjoy!

Sarah


2005                                                                                             2006


2013


2009
















2014
2015
2017
I became friends with Sarah around 2003 as we were part of a wider group of friends (scup the dirty AOH grungers, haha) and we later lived together.

I inherited the semi-famous Tubby cat (AKA Tubbz) from her, spent Christmases together (AKA St. Spickets), became godmother to her beautiful son Cian, and later devastated by his untimely passing. We've also been through many a carton of wine, mountains of white tights, bottles of Bucky, buckets of bobble hats and a million different hair colours between us!

Q. How do your illnesses effect pregnancy and child birth?

Tuesday, 15 August 2017

The wonderfully funny and annoying world of brain fog

...Or "mind mist" as I once accidentally called it!

For those who don't live in the realm of chronic illness and/ or chemotherapy, let me first explain the concept around "brain fog"/ "chemo brain"/ "mind mist", or whatever non-medical way you want to phrase it. I would even throw "baby brain" in there, as I imagine it's quite similar.

Everyone has those moments where they walk into a room and forget why, can't think of the right word for an object, have no idea where they left something important or simply lose their train of... thought. But "brain fog" (I actually went to write "brain flog there" -seriously) with illnesses is different -it's pretty much constant, and even though it can take several forms, it can be quite severe. It's more than just the normal mix-ups.

Usually there is no known cause or explanation for the phenomenon, and it's not generally medically recognised. I suppose in most cases it's something that isn't easily studied or monitored. During chemotherapy I put it down to, well -I've cancer... knowing that you have cancer is pretty distracting to say the least. Of course people with cancer have preoccupied minds.  I assume with certain conditions that effect blood flow and/ or oxygen to the brain, such as orthostatic intolerance, that the reason for confusion is a pretty obvious one. I had heard of the term "brain fog" within the chronic illness community before chemotherapy, and recognised that I had some issues (mostly forgetting where I left things!). But the first time I had actually heard a medical professional discuss it was when I was diagnosed with cancer -"chemo brain", as they called it. But other than that, doctors don't really bring it up. It's important to note that it is not a medical diagnoses, rather than an annoying, sometimes humorous symptom. If you suddenly develop this and have no idea why, please see your GP immediately so all possible underlying issues can be explored.

For me, since chemotherapy, my fog has grown to absolute mind farts. I can't recall the name of a lot of items, varies on the items from day to day of course, but it is constant. It's fine/ doesn't really effect my general life in a negative way. If anything, me and Bicky get quite a laugh from it. For others, depending on the reason for the mental blocks, it can't be very scary and worrying. The above example in the first sentence, is actually a true case -I had brain fog, about the term BRAIN FOG. Seriously.

Here are some other fine examples of what I'm talking about, from friends, fellow spoonies and fellow bloggers (as well as some of my own word bombs):