Like many EDSers, I'm in constant agony. There is no positive spin on that -It is what it is. Aids and splints have been a lifesaver when trying to get around, do activities
Happy momma to three fur-babies: Tubby (cat) and Emily and Louis (the dogs), and hoping for human ones in the new year ...and I know everyone says this on these types of blogs, but my partner (known as "Bicky" on here) is pretty patient, caring and generally an all-round swell guy, so ta to him. Scup de Bicky! (As we say in this part of Ireland). Expert shoulder put-it-in-er at this stage, and a fab wheelchair chauffeur.
I'm a youth worker by trade, although unable to work... Early retirement has been a horrible kick in the face. Volunteer suicide intervention officer. Founder of #IrishPainies - chronic pain support group. Also help out over at Irish EDS & HSD, check out their Facebook and Twitter. Give the a like/ follow and help spread the word about this condition.
I also love to paint and sew for charitable causes over at my side project, KittyLovesTeddies. Check out the Etsy shop too. Cute, kitsch and creepy delights.