☔ Chiari malformation
Like many EDSers, I'm in constant agony. There is no positive spin on that -It is what it is. Aids and splints have been a lifesaver when trying to get around, do activities
#EDS4IRE • • • Sign the petition • Use the hastag • Tell everyone why this is important to you • RT others responses • Join me on Twitter at @kittypotpie85 and Twitter.com/IrishEDSandHSD • • • No Irish patient should have to pay out of pocket to travel to the UK for basic healthcare. We get no where with the travel abroad scheme. Irish children and adults should not be left to deteriorate -we cannot let this continue into yet another generation... Sign here:. https://t.co/0x3ahpcmMt 💜 Use the image freely, but most importantly use the hashtag #EDS4IRE 💜 #ehlersdanlossyndrome #EDS #zebrastrong #chronicillness #disability #HSE #chronicpain #irishhealth #ehlersdanlos #hypermobility #hypermobilitysyndrome #jointhypermobilityspectrum #HSD #EDSandHSD #VEDS #HEDS #CEDS #irishedsandhsd #edsireland #Ireland #raredisease #disabilityblogger #disabilitypride #disabilityawareness #disabilityrights @upliftireland
Happy momma to three fur-babies: Tubby (cat) and Emily and Louis (the dogs), and hoping for human ones in the new year ...and I know everyone says this on these types of blogs, but my partner (known as "Bicky" on here) is pretty patient, caring and generally an all-round swell guy, so ta to him. Scup de Bicky! (As we say in this part of Ireland). Expert shoulder put-it-in-er at this stage, and a fab wheelchair chauffeur.
I'm a youth worker by trade, although unable to work... Early retirement has been a horrible kick in the face. Volunteer suicide intervention officer. Founder of #IrishPainies - chronic pain support group. Also help out over at Irish EDS & HSD, check out their Facebook and Twitter. Give them a like/ follow and help spread the word about this condition.
I also love to paint and sew for charitable causes over at my side project, KittyLovesTeddies. Check out the Etsy shop too. Cute, kitsch and creepy delights.