🧡 I’m supporting Rare Disease Day for all my sisters and brothers worldwide who have the rarer forms of Ehlers-Danlos Syndrome.
🧡 I’m supporting Rare Disease Day for my baby bump, who will be born in to a country that does not facilitate basic healthcare needs for Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders.
🧡 I’m supporting Rare Disease Day because we need expert medical specialists who understand this, and we need early diagnoses and intervention.
Today I choose to be a unicorn, because every other day I’m a zebra and go unseen by doctors in Ireland. Today I choose to be heard and shout for others #EDS4IRE #ZebraStrong #ZebraArmy #RarelyDiagnosed #HealthcareNotAirfare
Sign the #EDS4IRE petition and get involved at www.eds4ire.ie
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