Showing posts with label #IrishPainies. Show all posts
Showing posts with label #IrishPainies. Show all posts

Wednesday, 4 March 2020

Pregnant and Disabled

As some you probably know, if you follow me on Facebook or Instagram, I'm currently pregnant. It's been a very tough few months, trying to navigate not being on my usual wonder drugs that keep some of my worst symptoms at bay, while adjusting to the increase of symptoms that the pressure of pregnancy has placed on my body -as well as all the pregnancy usuals. We are delighted though, and cannot what to meet are little muffin.


I'm lucky enough to be in a maternity hospital and under a team of doctors, as deemed a bit higher risk than average. I won't go in to all the nitty gritty of how my health has declined throughout the pregnancy in this post, and what my doctors are taking in to consideration, but I might do a video for the #EDS4IRE YouTube channel outlining my personal story further. Here's just some of the increased issues I have faced to date, and indeed you may face too if you have these conditions. Just remember, even if your health profile mirrors mine, everyone is totally different! So take with a pinch of salt if you are wondering what to expect in your own pregnancy.

Saturday, 7 May 2016

The bad, the really bad, and the never ending


Physical pain is hard to talk about, almost as much as it is to live with.

I have had a horrible week. In general, I've had a very bad few months, but this week has been the worst -Although maybe I say that every week. I don't even know anymore.

The Baclofen I taken to control severe muscle spasms and tightness (which are usually quite good) are barely doing anything now.... It's a really strange sensation to explain. My body is like stone. Like something is grasping by whole body and squeezing.

A sharp, knife shoots through my shoulder blade. It cracks, pops, crunches. My neck twists. The only relief is by bending and pulling the shoulder, into place it seems. It's excruciating, but eventually after all the pulling and popping, it becomes numb. For a while.

It often travels from the shoulder, pouring down the arm. Becoming prominent around the joints -elbow, wrist and sometimes even fingers. My fingers have become deformed in the right hand the last few years, and I have no idea why. All I know is pain.

The hip pain is never really hip pain. It's hip pain, buttocks pain, lower back pain, thigh pain and knee pain. On days when I "over do it" it pops, then burns and swells. All these things are normal with hip pain, particularly the buttocks and the knee referral.

My flat feet cramp. My toes turn up in an effort to stabilise my body and not fall over. My legs are numb and unusable, for the most part.

I sleep all the time, yet I never

Wednesday, 27 April 2016

#IrishPainies

I vaguely mentioned previously, in my 5 year bucket list, that I wished to start an Irish support group for those of us who suffer from chronic pain.

I've never felt that I needed one-on-one counselling, although I have searched for local support systems -For any of my conditions. To no avail. And then of course, even something for general pain. Again, nothing near by. But sure I guess, everything is online these days, and I'm already a member of a couple of Facebook support networks for a few things. However, there's very few Irish based ones. I find these groups a tremendous crutch of support and