Health updates - Winter 2017

Howdy folks!

So few health updates...
(See previous here).

Head, Shoulders, Knees and Splints

As mentioned in the summer, I've started seeing a physio at last -one who knows a bit about EDS and willing to keep me on. Through her I was also put in touch with an occupational therapist, who was able to fit me with suitable to finger splints as well as a few other hand/ arm supports. The ring splints are truly amazing! I have so much more movement in my fingers, and they dislocate a lot a less. From typing, to even coughing into my hand, my fingers were honestly just crumbling and in a state of dislocation 24/7. So these have helped a lot. These tiny bits of plastic really do so much work. An exoskeleton of sorts. Next I need to inquire about something for my knee.

These little plastic things are a wonder of technology. Look at them there. How can something so small make such a big difference? Received these #oval8 #ringsplints from #occupationaltherapist a while back and they are simply amazing. I can write, type, lift a cup, with hardly any finger dislocations now. I'm in love 💗 #ehlersdanlossyndrome #EDS4IRE #occupationaltherapy #hypermobility #disability #disabilityblogger #dislocation

A post shared by ☾Kitty Colbert☽ (@kittypotpie85) on Nov 30, 2017 at 5:26pm PST

I also had a visit to the house to see what could be fitted. I turned down most things -I have issues getting in and out of bed but don't feel I require anything yet, I don't feel I need bars at the toilet as I have the bath one side and cabinet the other side so use them to sit down... The one thing I accepted was this beauty of a perching stool. The slopped design of the seat means that I can get far enough to the sideboard to chop vegetables, do the dishes, etc, but I'm also leaning on the seat comfortably. Perfect on days when I can't stand for long.

Neurologist, round 2

So after a year and a half since my first appointment with the neurologist, I *finally* had my second! Hurr-bloody-aaayy! Nothing incredible to report, but as I'm meant to mostly be blogging about my diagnostic journey, then it's worth a mention...

She would like to monitor my BP for a few days to see how low it is. Not the all important, illusive tilt table test but it's probably the next best thing! So at least we are finally getting somewhere. She also wants to see MRI results of one I had on my C spine a few years back (I was given a CD, hopefully still have it somewhere). At the time they took images of my brain but didn't actually read them/ include them in their report. They were mostly concerned with the C spine and any damage done to the shoulder. It's just cautionary, rule out any nastier reasoning for being dizzy, clumsy and the general lack of coordination.

Here's a photo from that MRI that I do happen to have. I look dam sexy as a size 0.

Not sure yet when I'll