from an airport parking garage at Tampa bay international airport.
When her name is mentioned in Facebook groups, when I see her photo, or simply when I'm talking to a fellow potsie or spoonie online who seems a bit down, I think: That could have been any one of us. Living with chronic physical pain is tough and it is relentless.
Let not the death of this beautiful young girl be in vain.
- Print off information about dysautonomia/ POTS (or even any other invisible illness/ chronic illness that you feel is under represented in the media and in society) and bring them to your GP. Not all doctors know everything, and while it's ok not to be an expert on everything, they should want to learn the basics. Especially here in Ireland! When it comes to knowledge of these conditions, we are seriously lacking behind even our UK neighbors.
- Campaign and advocate where possible, tell friends and family the facts... even simply like some Facebook pages! Further information of the illness can be found on these pages and their websites. Plus liking a page simply helps show your support while promoting the cause.
- Irish Dysautonomia Awareness
- Dysautonomia Advocacy Foundation
- Dysautonomia International
- The Dysautonomia Project
- Make POTS Known
- With a Side of Salt
- POTS Support and Awareness
- Standing Up to POTS
- Put this image as your Facebook and or Twitter profiler: