[Video] Happy New Year from my ME flareup

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• Silent Valley • I’ve been wanting to do this walk for a very long time. Slept for several hours after and will take days to recover, but worth it. • • • • #silentvalley #silentvalleyreservoir #kilkeel #northernireland #norniron #ireland #discoverireland #ehlersdanlossyndrome #winterwalks #winterinireland #newyears #christmas #yule

A post shared by ☾Kitty Colbert☽ (@kittypotpie85) on Dec 30, 2018 at 1:52pm PST

If you follow me on Instagram then you'll know I was quite proud to visit a site recently that has been on a list of things I wanted to complete -The Silent Valley Reservoir/ Mountain Park. We walked for nearly an hour and I used only my cane. I had stories up throughout the trip on social media and took some pretty nice snaps with my DSLR.

It was tough, very tough, I could barely bend afterwards to get back into the car. But extremely glad I achieved what I wanted to; feeling quite proud.

Here's some photos of the day and a video of the aftermath, because it's really only fair to show both sides -I could make everything look pretty and shiny in my life through social media but we all know that's a load of bollox. I do myself and my conditions no justice by not representing the truth. On top of that it's harmful to any young, impressionable zebra out there (or anyone with chronic conditions) who feel like a failure for not living up to what many portray online. 

Health update - Upright MRI 2018

Hi everyone, thanks for stopping by! Here goes with all the boring health updates. Starting firstly with the obvious, the important London stuff including upright MRI.

At the start of the month myself and Bicky set off for London for the upright MRI and to meet with an experienced physiotherapist there. We booked three nights in the hotel, knowing that travel is very difficult, tiring and painful. And from what I had heard the upright MRI is no picnic (plenty of rest needed afterwards -not travel). Flexing the neck triggers the symptoms we are there to investigate in the first place.

I spasmed, jerked and gagged during the long and slow scans. But all in all I did pretty well and was quite proud of myself. It wasn’t pleasant, to say the least, but the staff were lovely and understanding. Afterwards I vomited, the gag reflex was just too much, but that was after the fact so I’m not counting that, haha.

Physio

The next morning I met with the physio, and what an experience! I don’t think I’ve ever had such a comprehensive and educational appointment. I learned so many interesting things about how my body works. The lovely physio didn’t have my MRI results, which the consultant had hoped she would by then. But by simply feeling my spine and areas of my body, she was able to tell me a lot about what was happening under my skin.

Spine

Feeling along my spine as I moved my head to the sides, backwards and forwards, she was able to tell me that only part of my cervical spine was assisting in this movement -unlike with the average person, who moves parts of both their C spine and their thoracic spine. My T spine is locked and will not move on its own, causing pain to the overworked C spine. She pointed out that our bodies are quite amazing, in that if they can’t do something in the normal way, they will endeavor to find a way – even if that way is injuring us -“Your body will find a way to make that movement if it can”. So interesting. 

Image by Freepik

This explains one of my longest running symptoms and major causes of pain. As a child I called it “spine freeze” but this is NOT a medical term, merely a childish way of trying to explain to doctors what was happening to my body. On lying down my spine would seize entirely, although more so focused at neck and mid back areas. I could barely move, and any tiny movement felt like my spine was about to snap. It was like one, long unflexing pole. It was both terrifying and agonising in equal amounts when I was a child. I still experience this phenomenon but only a few times a month.  Sometimes I feel what I call twitches when standing/ sitting, but I can unlock these. Unlike when I’m lying down and I just have to wait it out. While still scary, the lesser frequency has helped, as does age -I suppose I got somewhat used to it.

New years day

New years day walk // Stephenstown pond

🌞Sunset ~ Venus ~ Moonrise🌙

Go fuck yourself January

As January was such an almighty disaster of sickness and pure crap (I also managed to get a lovely stomach bug from my trip to hospital, which still hanging around a week later... although no pun intended!) I'm going to see February as the real start of the year... So fuck off January! No one likes you anyway, ya prick...









So time for something a bit more

Midweek randoms

Not exactly midweek for another hour, but most definitely random. Wee thoughts and recent observations that don't individually deserve their own whole post...  Fun-filled links, titbits (Or is is tidbit? I wasn't sure, LOLZ, doubted myself and had to Google it!) of information you should be aware of and just downright demands/ things you should do, read, watch... Bite size CrippleBaby, if you will... Fun size, even! Have I sold this to you yet? Good. Carry on. 


If you donate to nothing else this year, donate to create Ireland's first cat cafe in Dublin... Yep. You read correctly:
Cat Cafe!

Finally having my second/ big neurologist appointment this month. 1 and half years after the last appointment... Nervous. And not just because it's on Friday the 13th... *Reminds self that superstitions are complete twat bollox*

Want to travel and volunteer? Apply for this (Not one of those scammy organisations, I promise):




Live in Dundalk? Go to this every Tuesday in the Bartender:

Prepare to wet yourself: To Kill a Mocking Bird sequel! 

Visit my new side thing (cause I didn't have enough going on)... Free stuff

Enjoy comedy